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#42 Live Boldly! How Amy Cohen’s NYC Marathon Finish Redefined the Limits of Sickle Cell Disease

#42 Live Boldly! How Amy Cohen’s NYC Marathon Finish Redefined the Limits of Sickle Cell Disease

by Rome Madison | Feb 16, 2026 | Uncategorized

We are honored to speak with Amy Cohen, who made history as the first person with sickle cell disease to run and finish the New York City Marathon.  She opens up about her diagnosis, and the pivotal moment in high school when the reality of the disease set in,...
#41  Precision Medicine in Heart Failure: How Genetic Testing Can Prevent Sudden Death

#41 Precision Medicine in Heart Failure: How Genetic Testing Can Prevent Sudden Death

by Rome Madison | Feb 8, 2026 | 2026 Season 2, Cardiomyopathy, genetic testing, Heart Disease

In this episode research geneticist and author Susan Liebman joins us to tell the personal and scientific story behind her memoir The Dressmaker’s Mirror: Sudden Death, Genetics, and a Jewish Family’s Secret. Susan unpacks generations of silence around heart disease...
Episode 40 – UNBREAKABLE: Precision Medicine and the Strength of the Sickle Cell Community

Episode 40 – UNBREAKABLE: Precision Medicine and the Strength of the Sickle Cell Community

by Rome Madison | Feb 2, 2026 | 2026 Season 2, CAR-T therapy, Clinical Trials, Sickle cell

In this powerful episode Rome interviews Wumi Bakare and Christelle Salomon, two amazing women who are sickle cell warriors and hosts of the Through the Genes podcast. September is Sickle Cell Awareness Month. Wumi and Christelle share their personal stories of living...
Episode 39 – Next-Gen Cancer Care: An Expert Look at Physician Adoption and Patient Access to Life-Saving Biomarker Testing

Episode 39 – Next-Gen Cancer Care: An Expert Look at Physician Adoption and Patient Access to Life-Saving Biomarker Testing

by Rome Madison | Jan 24, 2026 | 2026 Season 2, Cancer, genetic testing, genomic testing

Rome sits down with Stephane Budel, Founding Partner at Decibio, a premier strategy consulting firm dedicated to advancing precision medicine.  This conversation aims to demystify the complex world of NGS testing, providing patients, caregivers, and healthcare...
Episode 38 – Positive Genes = Personal Power! How Genetic Testing Drives Confident Healthcare Decisions

Episode 38 – Positive Genes = Personal Power! How Genetic Testing Drives Confident Healthcare Decisions

by Rome Madison | Jan 18, 2026 | 2026 Season 2, Cancer, genetic testing, Hereditary cancer testing

This week we sit down with Sara Kavanaugh, the voice behind The Positive Gene Podcast, who shares her deeply personal story as a cancer pre-vivor. Discovering not one, but two gene variants (CHK2 and MSH6 associated with Lynch Syndrome) that significantly increased...
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Recent Posts

  • #42 Live Boldly! How Amy Cohen’s NYC Marathon Finish Redefined the Limits of Sickle Cell Disease
  • #41 Precision Medicine in Heart Failure: How Genetic Testing Can Prevent Sudden Death
  • Episode 40 – UNBREAKABLE: Precision Medicine and the Strength of the Sickle Cell Community
  • Episode 39 – Next-Gen Cancer Care: An Expert Look at Physician Adoption and Patient Access to Life-Saving Biomarker Testing
  • Episode 38 – Positive Genes = Personal Power! How Genetic Testing Drives Confident Healthcare Decisions

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