In this powerful episode, former Kansas City Chiefs great Art Still shares his personal journey with hereditary ATTR amyloidosis (hATTR), a genetic mutation affecting 1 in 25 African Americans that can also lead to cardiomyopathy. Art discusses how years of playing in the NFL masked the symptoms of this underdiagnosed condition, which can lead to heart failure and other serious health issues. He emphasizes the importance of genetic testing and early detection to manage the disease and extend your shelf life.
Art’s commitment extends through his foundation, STILL4LIFE.org, where he shares his story and provides resources for others affected by hATTR. The foundation aims to bridge the gap between the medical community and the public, using accessible language to explain complex genetic concepts. Discover how STILL4LIFE.org is empowering individuals and families to navigate the challenges of hATTR and advocate for their health.
Key Takeaways:
- hATTR is an inherited genetic condition that often results in heart failure early in life
- Symptoms like numbness in feet and hands, unexplained lower leg swelling and carpal tunnel may be signs of hATTR
- Germline genetic testing can help with timely diagnosis and management
- Black Americans are disproportionately affected by hATTR
- Raising awareness and improving trust in healthcare are crucial for early detection
For more information about hereditary amyloidosis visit https://www.attrrevealed.com/
